Links

SUPPORT GROUPS AND SOCIAL NETWORKS

Rare Disease Support Group
www.inspire.com/groups/rare-disease/
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Support Community for Autoimmune Diseases
communities.healia.com/?q=communities/autoimmune-diseases
Welcome to the Healia Health Community for Autoimmune Diseases. Through this Autoimmune Diseases support group, you can get Autoimmune Diseases information, share experiences about Autoimmune Diseases, connect with peers, and get answers to your Autoimmune Diseases questions from health professionals.

Autoimmune Support by Google Groups
groups.google.com/group/autoimmune-support-group?lnk=srg
A place where anyone with any autoimmune disease can get the support they need.

Kidney Friends by Yahoo Groups
health.groups.yahoo.com/group/kidneyfriends/
I have started this group for people with a kidney disease or for people who have a family member with a kidney disease. My mission is to form a support group to talk to others what we may be feeling and offer support for one another, talk about anything under the sun, moon and stars.

NephSpace
www.nephcure.org/nephspace-online-community
The NephSpace Support Community connects nephrotic syndrome (NS) and FSGS patients, families, friends and caregivers for support and inspiration. The NephCure Foundation sponsors this community, an Inspire trusted partner.

Kidney Diseases Online Health Community and Support Group
communities.healia.com/?q=communities/kidney-diseases
Welcome to the Healia Health Community for Kidney Diseases. Through this Kidney Diseases support group, you can get Kidney Diseases information, share experiences about Kidney Diseases, connect with peers, and get answers to your Kidney Diseases questions from health professionals.

MESSAGE BOARDS AND FORUMS

National Kidney Foundation (NKF) Message Board
www.kidney.org/nkfmb/index.cfm
Forums include groups discussing, dialysis, living organ donors, their families, those waiting for an organ transplant, transplant athletics and Patient & Family Council (PFC). The National Kidney Foundation (NKF), for people with chronic kidney disease and their families founded PFC in 1995. It provides an avenue for patients to express their concerns and identify problems so that the NKF can help address those concerns and problems in an effective way.

DaVita Discussion Forums
www.davita.com/forum/index.php
Most of these forums focus on kidney dialysis.

Kidney Corner by Google Groups
groups.google.com/group/kidney-corner?lnk=srg
Kidney Corner provides information to make pediatric kidney disease understandable and connect people dealing with kidney disease in children to each other.